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Nine year old’s mountain climb in memory of cousin

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NINE year old Forest & Sandridge student, Ollie Tuckwell, will climb Mount Snowdon – the highest mountain in Wales – next week in memory of his 10-month old cousin who died this year.

Ollie will make the climb on Friday 31st July, which coincides with ANE Awareness Day – an annual event that raises awareness of the rare disease called Acute Necrotizing Encephalopath of Childhood (ANE) – the disease that his cousin, Grayson, died of in March this year. ANE is a rare neurological disease that affects the brain; it usually follows an acute, mostly viral, infection.

Ollie will be making the climb with other family members, including his mother Vicky. An initial fundraising target to raise £500 for the Grayson’s Legacy Support Trust – an organisation set up by Grayson’s parents to raise awareness of the disease and raise money to support other affected parents – has already been smashed. So far, over £1,700 has been raised.

Ollie told Melksham News, “I feel nervous because it’s going to be very difficult,but I’m doing it to raise money and awareness for Grayson’s charity.

“I want to raise as much money as I can to help other children and families and make sure more people know about ANE.”

To support Ollie and donate, visit: www.justgiving.com/crowdfunding/graysonslegacy-supporttrust-1

For more information about Grayson’s Legacy Support Trust, visit: www.graysonslegacysupport.co.uk

Picture: Vicky and Ollie Tuckwell with a photo of Grayson, Ollie’s cousin who died this year age 10 months.

4 Responses to Nine year old’s mountain climb in memory of cousin

  1. ANE International

    July 22, 2020 at 11:21 am

    Ollie is a true champion for doing this climb for Grayson and to raise awareness of ANE.
    ANE typically affects healthy children, the preceding viral illness is usually influenza.
    The progression of the disease is rapid and early treatment is crucial. It’s a devastating disease.
    ANE families around the world will be cheering Ollie and the other climbers on.
    Thanks Ollie and see you at the top!

  2. Lorraine

    July 22, 2020 at 6:34 pm

    Well done for doing what you’re doing Ollie! You’re raising money and awareness of ANE…you should feel very proud!

    Grayson was a beautiful little boy and I’m so pleased his parents have been able to set up a charity in his memory.

  3. Uncle Paul

    July 29, 2020 at 5:08 pm

    Well done Ollie, We are all very proud of you.

  4. Lynne Williams

    July 31, 2020 at 11:28 am

    Well done Ollie, Vicky, Craig & other family members walking today.. you’ve got this!!

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